Just wanted to introduce mysell
 

Hi everyone, my name is Bill and I'm a new member to this forum. I would like to say that I'm happy to be in a group that can discuss common problems.

I'm in the older group (73) and have just been initiated into the Exjade atmosphere. I'll be able to comment, hopefully constructively, in the near future.

Hello Bill and welcome. Thanks for offering to share your experiences with other patients.

How long ago were you diagnosed with MDS? Since you're starting Exjade, you've presumably been getting transfusions as supportive care. Have your transfusions been frequent? Have you had any other MDS treatments?

Thanks for the message neil
 

I guess it was about 3 or 4 years ago I was diagnosed with MDS. The transfusions aren't too frequent (every 5 to 7 weeks), I've been getting them for a little over a year. I've received Arenesp injections before they began the transfusions but it wasn't much help. Lately the doctor has been giving the Arenesp injections in addition to my transfusions and it has been beneficial for the first couple of weeks, however, like everyone else that receives multiple blood transfusions, I've accumulated large amounts of iron . . . thus the Exjade odyssey begins.