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-   -   New to all of this--BMT insights (http://forums.marrowforums.org/showthread.php?t=5472)

GAK Fri Jul 22, 2016 04:14 PM

New to all of this--BMT insights
 
Hi, I'm new to this forum and it's encouraging to know that there are others going through all of this. I'm scheduled for a BMT visit next week to get the process started and wondering if there are others out there who would be willing to help me understand what to expect. I'm Asian and they say finding a match could be more difficult and take longer also.

bailie Fri Jul 22, 2016 06:24 PM

Welcome to the forum! If you have a chance to go through the archives in this forum you will be able to learn about many experiences. You will quickly find out that all experiences are not the same. Let us know what your situation is regarding diagnosis, lab results, age and how you are feeling. We wish you the best.

GAK Sat Jul 23, 2016 12:43 AM

Thanks Bailie,

I'll start looking through the forum discussion and will also come back and post more of my details for better counsel. First time I've joined a forum, actually amazing to know there are others out there.

kyis Mon Aug 1, 2016 11:38 AM

I too will be transplanted soon. Day zero is set for August,18. Matches must be getting better. I am half Asian and had 16 perfect matches. Best of luck

GAK Mon Aug 1, 2016 12:33 PM

Thank you
 
kyis, many thanks for your post. This is very encouraging. They are just starting the process for me to find a match. Awesome that you have 16 perfect matches. I wish you the best and please stay in touch. GAK

Cheryl C Tue Aug 2, 2016 01:51 AM

What is your diagnosis GAK?

GAK Tue Aug 2, 2016 12:11 PM

Hi Cheryl,

My Dx is MDS RAEB1, 8% blasts, ANC 400, Hbg 4.7 (now transfused), platelet 106. I have meaningful marrow fibrosis and they are putting me on the "fast track" to BMT.

Thanks for any thoughts

Cheryl C Wed Aug 3, 2016 12:21 AM

Hi Gak - I'm sorry you've ended up joining the MDS club. I hope a match can be found for you promptly.

There are some very helpful people on this forum so keep posting!


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