Finding the "right" doc
 

Any ideas about how one would go about identifying a dr in the UPMC system who has shown insight in the treatment of MDS patients?

What is UPMC system?

Well, since the OP is from Pittsburgh, I'm guessing they mean the University of Pittsburgh Medical Center. If your own heme/onc doesn't know anyone there, you could always call the department, ask to speak to an RN, if they let you, and ask them who treats the most MDS patients in the group. They want to get patients to the correct physicians, in my experience. If that doesn't help, you could call the MDS Foundation and speak to the patient advocate. They know the doctors who specialize in MDS, and can steer you in the right direction.
Mags

You can also check with you insurance company. They may have a list of in-network physicians and their specialities.