should we be worried?
Hey guys
dad has just gotten his second biopsy and passed day 100 he's had steroids for acute GVHD but is tapering them off platelets are coming back up hbc is 11 and vitals are good initials results are not showing any sign of the cancers but his wbc went from 4 to 1.6 should we be worried (they told us it could be because of the prednisone) |
Shadowii,
Congratulations to your dad for surpassing day 100. May it be one of many milestones to come. All I can advise is that your dad asks lots of questions, takes his drugs as assigned, and trust the doctors. Blood counts can fluctuate a lot after transplant and are frequently drug and dose sensitive. The key at this point is to be sure that your dad avoids buffets and undercooked or unclean foods, wash hands a little more, etc. as is prescribed for lower white counts. I found that prednisone usually increased wbc, bur during tapering you can see unusual drops. Transplant is part art, part science, so expect adjustments. |
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Hi shadowii,
From experience, I have seen that prednisone causes a false rise in WBC's (leukocytosis). So, I would not be concerned if his WBCs went down when it was discontinued. |
UPDATE
Biopsy came back: no presence of CLL or MDS!!!! white count is same as last week but not getting lower (probably steroids and/or gvhd) platelets improved by 20 points this was such a long week |
Great news that the biopsy came back negative. Hopefully blood counts will start rising soon.
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anyway counts are stable pretty identical to last week.
They are changing one medication to see if it is whats lowering the blood counts. One annoying thing is he has mixed chimerism. the myloid is now 100% me (which considering that's where the mds came from that's good) but another line is like 73/27 ratio me/him they don't seem worried but its hard not to be when ive how fast things can go south |
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