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Whizbang Tue Jul 8, 2014 12:51 PM

Started chemo last night...
 
Started 7+3 chemo, the standard for Leukemia treatment (including RBC/AML) Yesterday, otherwise feeling ok... No more pain attacks, HGB at 9.4 after a 1 unit transfusion on Sunday when I was admitted...

The chemo is harsher than Dacogen, so they want me loaded up... Platelets are 25 so I'll be getting a unit of those today...

All the Best, and may God Bless...
David

bailie Wed Jul 9, 2014 12:44 AM

David, I am empty for adequate words. I am pulling for your progress and know that if anyone can regain control it would be you.

sbk007 Wed Jul 9, 2014 09:35 AM

Dave, Sending prayers to you and wishing you well.

Chad S Wed Jul 9, 2014 04:58 PM

Whizbang,
So sorry to hear of this setback. We know you will pull through once again and will be praying for a speedy recovery.

Whizbang Wed Jul 9, 2014 07:09 PM

Thank you all for your support, I have no doubt things will turn out well, they caught this so quickly, everyone is quite optimistic about a good outcome...

I'm still young and strong, and ready to fight...

Day 3 of chemo, and all is well... except hiccups again...

The Best to all, and may God see us through....
David
(Bring out the pillow)...

Bhutt Wed Jul 9, 2014 09:30 PM

Wishing you all the best.Will keep you in our prayers.

Blair

Whizbang Thu Jul 10, 2014 12:40 PM

D4 chemo
 
Had a 102 fever last night from the Daunorubicin (the 3 of the 7+3) chemo, quickly went down to 100.3 and then 99...

Still got antibiotics, chest X-ray, blood cultures... counts coming down slowly...

Cytarabine (the 7 of the 7+3) chemo is still giving me hiccups, but the pillow helps (breathing into a pillow will get rid of hiccups - carbon dioxide buildup)

Feeling pretty well considering...

All the Best, May God Bless us all...
David

Cheryl C Thu Jul 17, 2014 02:49 AM

Hi Whiz. Shocked and sorry to hear about your recent episodes and subsequent forced reversion back to chemo. I will pray for you.

Re the reaction to IVIG infusions.... I have them every 4 weeks. The only time I've had a weird reaction was when the nurses ran it too fast. My blood pressure went up to 180 (normally around 95-105) and I had pre-migraine-like circles rotating around in front of me and lost my vision of anything else. Was on the point of fainting when I managed to attract the nurses' attention. Anything over 240 drops per min is too fast as it's a viscous fluid. I have 15 min on 60 dpm, then 15 min on 120 dpm, then it goes up to 240 dpm if there are no problems. I'm wondering what your regime for IVIG was?
Occasionally I have a minor headache the next day but usually not.

All the very best as you fight the battle again.

Whizbang Sun Aug 3, 2014 12:05 PM

Day 27 since the start of my chemo for RBC Leukemia, finally seeing some counts:
0.5 for WBC's (they were 0.3 for 9 days straight then 0.4 for 2 days)...
27 for PLT's (25, and 19 two days before that)...
7.2 for HGB (7.3, and 7.5 two days before that)...

Finally seeing some upward momentum, chemo was tougher on my counts than on me physically... RBC destruction has finally slowed to a trickle, and should turn the corner soon... WBC's and PLT's are rising on their own!!!

Once counts normalize, I should have another BMB, to determine whether or not I will have 2nd round of chemo or go straight to transplant...

Actually feeling pretty good considering my low HGB... I guess I'm getting used to lowish HGB...

Will hopefully make it home from the hospital for a few days either way, will be nice to be home after a month in a hospital bed...

All the Best to everyone, and may God Bless us ALL!!!

sbk007 Sun Aug 3, 2014 08:09 PM

Thanks for the update Dave. Good to hear you're moving in the right direction and you're feeling pretty good. Hoping you can forgo any more chemo and go straight to transplant.

DanL Mon Aug 4, 2014 05:07 PM

Great update Dave! I hope you get the few days of rest at home before moving to transplant. There's no place like home.

Whizbang Tue Aug 5, 2014 07:44 PM

29 Days since start of chemo
 
WBC's rose to 0.7 (0.6 Yesterday) ANC still zero, but Dr. sees precursors in blood...

PLT's rose to 43 (37 Yesterday)

HGB at 7.4 (6.7 Yesterday so I got a RBC Transfusion)

Feeling very well, waiting for my counts to spike up so I can go home for a few days...

Saw the Doctor today, she scheduled me for a follow up Bone Marrow Biopsy for next Wednesday, to determine next course of action (2 round of chemo or straight to 2nd transplant)...

All the Best, and may God Bless us ALL!!! (We all need it in some way)

David

bailie Tue Aug 5, 2014 09:32 PM

David,
I really like hearing improving numbers for you. I appreciate all the information you have shared. Thank you.

Whizbang Wed Aug 6, 2014 05:19 PM

30 days since start of Chemo
 
WBC's rose to 0.9 (0.7 Yesterday) ANC hit 0.1 (need 0.5 to go home)
PLT's rose to 56 (43 Yesterday)
HGB up to 7.6 (7.4 Yesterday with no Transfusion)

Still feeling very well, ready to go home for a few days...

All the Best, and may God Bless us ALL!!!

sbk007 Wed Aug 6, 2014 05:23 PM

David,
Great to hear you're feeling good.
Now get the anc over .5 and go home!!
Hope that happens very soon..like today!! - take care
Steve

Whizbang Sun Aug 10, 2014 04:10 PM

35 days in Hospital and counting
 
WBC's rose to 1.2 (1.1 Yesterday) ANC hit 0.4 today (need 0.5 to go home)
PLT's rose to 89 (80 Yesterday)
HGB up to 8.6 (8.5 Yesterday)

Still feeling very well, ready to go home (Hopefully tomorrow) for a week or two, 2nd transplant tentatively moved to mid September...

ANC had hit 0.3 a few days ago, but fell to 0.2 for two days before going to 0.4 this morning... Blood counts have been very stubborn but generally are on the rise....

All the Best, and may God Bless us ALL!!!

sbk007 Sun Aug 10, 2014 05:25 PM

Hope you get out of there soon. I can imagine you're anxious to get out of there already. Looks like your moving in the right direction. Hope you can go home tomorrow.
Take Care

Whizbang Mon Aug 11, 2014 11:05 AM

ANC = 0.5!!!!

Going home for some well deserved family time...

DanL Mon Aug 11, 2014 01:23 PM

Woo Hoo!

sbk007 Mon Aug 11, 2014 04:20 PM

My sentiments exactly
 
With the WOOO HOOO. Great News!!

johnwc Mon Aug 11, 2014 08:10 PM

fabulous
 
really happy for you.

Cheryl C Tue Aug 12, 2014 07:23 AM

Enjoy! So pleased that you have made it home again. You are an inspiration to all of us. God bless.

SLB Tue Aug 12, 2014 07:38 AM

Great news... Enjoy your time at home!!

Birgitta-A Tue Aug 12, 2014 02:26 PM

Neutrophils
 
Hi Whizbang,
Congratulations! Take care!
Kind regards
Birgitta-A

Bhutt Tue Aug 12, 2014 02:42 PM

Great news. No place like home.

Blair


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