Site Availability April 2017
The Marrowforums forums were unavailable for 5 to 6 hours today, due to changes by our service provider.
We have restored forum availability and we will continue to monitor the situation. Our apologizes for the inconvenience. |
Thank you Neil for all of this. We really appreciate the effort you have made through the years.
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Thank you very much from me too, Neil. Marrowforums is a life-line as I don't know anyone else with MDS. I've learned so much, and the courage of those who fall into the high-risk category is inspiring.
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Are these forums active? I realize that bone-marrow diseases are rare, but I have myelofibrosis, and I'm surprised that there is so little discussion of it here.:confused: I did find one thread that dealt with a bone-marrow transplant, but that's all.
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Here are two listservs that people with myelofibrosis might find useful: MPDSUPPORT@LISTSERV.ICORS.ORG |
It is beginning to be supported by the Aplastic Anemia MDS Foundation.
http://www.aamds.org/diseases/related/myelofibrosis-mf Contact them for more information. |
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I'm glad your wife is doing so well. What would the conventional treatment have been? |
Myelofibrosis and alternative treatment
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