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-   -   Mylodyplastic Syndromes (http://forums.marrowforums.org/showthread.php?t=3155)

ripcord1461 Thu Sep 13, 2012 06:46 PM

Mylodyplastic Syndromes
 
Hello my good people. No matter what happens, never ever give up hope. I've been living with MDS for the past 12 years on blood transfusions and Neupogen injections. I was exposed to benzene in the work place back in 1993 or 1996 never knew I had it until 1999. It was one big shock! I have been receiving treatment since then. So keep on fighting. God bless us all.
Jerry Reed
Bronx, New York

Neil Cuadra Thu Sep 13, 2012 07:32 PM

Hi Jerry.

You set a nice example of survivorship. Thanks for the positive message.

Since it can take a while for MDS to be diagnosed, perhaps you actually had MDS for as long as 15 or 16 years.

milliken2 Thu Sep 13, 2012 08:18 PM

Jerry;
Like Neil said - thanks for the positive words about survivorship. I only wish my husband has that many more. And since he was on Coumadin for many years - with benzene being one of the properties in it - he got 'dosed' without even knowing it.
Take care - and keep up the positive attitude attitude.

Beth

AngieA Fri Sep 14, 2012 09:43 AM

Thanks for that. I really needed to read that today!

slip up 2 Fri Sep 14, 2012 12:50 PM

Jerry...and many many more healthy years...

Kate

rkp Fri Sep 14, 2012 02:26 PM

Thanks for posting this message Jerry.It gives hope to others who are going through this....
Good wishes to you for healthy years ahead.
-RP


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