How is IPSS score determined ??
 

I don't know my IPSS score yet, although I have been told that I am "low risk" MDS.

What are the factors that determine this scoring system ?? I know that one of them is the blast percentage ....

Thanks for any help .....

Ann

Hey Ann!

There's a good description on this page:

http://www.marrowforums.org/mds.html

And a handy tool to help you calculate your own here:

http://www.marrowforums.org/tools/mds_classification.html


The IPSS has four categories: Low Risk, Intermediate -1, Intermediate-2, and High Risk. The first two are considered "lower risk;" the others "higher risk."

Take Care!

Greg

Thanks, Greg !!!

As always, you are super-helpful .... and a great resource for information !!!!

Ann

I used the calculation tool and came up with an IPPS of 1.5 as Intermediate 2 but then I don't have MDS!! I have Cu deficiency.

BMB shows dysplasia in reds and whites, blood has 2 sometimes 3 cytopenias and ringed sideroblasts of 78%, blasts of 7% with one other chromosomal abnormality (del 15 q). add them together you get the 1.5


It makes you realize why it's so hard for doctors to diagnose hematological disorders.

Regards

Hey Ann!

If you have any trouble figuring out your number, guide a shout and I'll try to help.

There are a couple of newly-published revisions to the standard IPSS, plus a couple of other scoring systems, including a very promising one from MD Anderson that has been validated in a separate population at the Cleveland Clinic.

If you are interested in those, let me know and I'll point you towards them.

Take Care!

Greg