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-   -   Mouth Sores (http://forums.marrowforums.org/showthread.php?t=2804)

cheri Tue Apr 3, 2012 10:08 AM

Mouth Sores
 
Recently I have been getting black mouth sores on the inside of my cheek....
My Dr always checks for them, but until recently, I haven't had them. I know it is a sign of something, I just can't remember what! I just know it's not a good sign...they go away after several days, but then I just got another one.
I am NOT on any type of chemo currently, which is generally a cause.

Anyone?

riccd2001 Tue Apr 3, 2012 11:55 AM

It's a mystery to me too. Usually I have them within a few days of PRBC transfusion. Curently off Exjade for another week or so - I thought there was a connection, but the sore I'm dealing with now has been the most painful and long-lasting. I guess for me it's just a risk involved with living with regular transfusions. None of the usual mouthwashes that have been helpful to me so far have done anything for this nasty little $#%@^#.:cool:

cheri Tue Apr 3, 2012 01:10 PM

hi ric...
Funny, I do need a tranfusion tomorrow.......or do you get them after? I have been getting a lot of transfusions and am now on Procrit weekly......
Mine don't hurt, per se...

cheri Tue Apr 3, 2012 06:54 PM

Well, I saw the Doc today and he said they are blood blisters, not mouth sores...I guess I have been biting the inside of my cheek when I sleep?

bebop Wed Apr 4, 2012 04:14 PM

my dad had those a couple of times. dr said his plts were low which they were but can't remember how low. maybe in the 20s or so

cheri Wed Apr 4, 2012 09:09 PM

Hi Bebop!
How are you holding up! Thanks for keeping in touch!

Hopeful Thu Apr 5, 2012 12:01 AM

Hi Cheri,

I remember getting them when my platelets were low. They can even occur on the roof of your mouth and places where you can't bite.

bebop Tue Apr 10, 2012 03:54 PM

cheri I am hanging on. almost a year now and the anniversary is quickly approaching. kind of feeling rough at the moment. good to see you hon.

milliken2 Thu Apr 12, 2012 05:00 PM

Cheri;
Are you on any type of antibiotics? I know when my husband is on IV Vancomycin - or when I have given it to him at home via his PICC line and an intermate - he always gets mouth sores. Rocephin does the same thing to him. Ask your Dr. to order you "Swish and Swallow". It is a combination of 4 different things - but soothes the mouth, and lets you eat. All druggists that I know are able to mix it. Good Luck to You. :o


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