Four years since transplant!
 

i am 4 years post transplant. I continue to deal with gvhd of skin and eyes. I have steroid induced high eye pressure and dry eye. May have to have eye surgery to reduce pressure. I continue to tire and require short naps. Life is good nonetheless! Ahhhh 4 years!:)

Lori,

Congratulations on the 4 year anniversary!

Hurray and happy rebirthday!!!

Congrats on 4 yrs!!! I just had my 3 yr for PNH. I had a good match and have had fairly mild GVHD. I am not taking any steroids anymore, but I am taking a med usually pres for leukemia and a few other things. I hope that you continue to do well.

Congrats on your 4th birthday

Blair

Great news, Lori! We need all the positive stories we can get on this forum. Happy birthday from me too.

Congratulations and happy 4th re-birthday! I remember reading your story over the years and being inspired by your strength. Keep on fighting!! :)

Karin early on your path
 

Hi Lori. It seems Karin (friend and mother of my kids) who is 52 is on a similar path. She recently had induction chemo at UNM Hospital for Acute Myeloid Leukemia that developed from MDS just when we thought we were going for a unrelated donor BMT at Methodist Hospital in San Antonio TX. 28 days from start of chemo is April 13th when a marrow biopsy is scheduled. Karin has had PNH for 26 years, severe AA since July 2013, low grade MDS for a while. Currently she is discouraged because neutrophils are not recovering and the hematologists are talking about needing 1000 neuts for a sensible marrow biopsy (to indicate < 5% blasts i.e. AML in remission). Karin concerned that BMT slipping further and further into future. Cannot see how a severe AA patient can muster 1000 neuts. Did you get your BMT (or SCT) even though you could not show AML in remission? Thanks and congrats on 4 years post BMT.

Congratulations, Lori! I just came on the forum, the first time in a long time. It is funny how after remission and the restoration of health, you kinds of back away from constant reminders of illness.

I hope that your GVHD has subsided, especially your eye issues. I also hope that you are still out there on your motorcycle!!! WOOHOO!!

PTL

Congrats on your re-birthday!!!!!!!!

Congratulations on your 4th birthday! I have enjoyed reading about your positive journey. I just joined the forum and would love to know of any supplements that you have found helpful. My father was newly diagnosed with MDS. Thank you

Congrats Lori!