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-   -   exjade (http://forums.marrowforums.org/showthread.php?t=5071)

aussie danielle Thu Aug 13, 2015 10:33 PM
exjade
 
im looking to talk about exjade and its ups and downs i have just been put on it and wonder hoe others are going on it?? Aussie danielle

riccd2001 Sat Aug 15, 2015 06:07 PM
My Exjade "relationship..."
 
Hey there downunder - As we say in this wonderful forum, YMMV and we all seem to have different reactions to the treatments available.

I've kept a detailed record of CBCs including serum ferritin and creatinine levels because one of the Exjade side-effects for me is rising creatinine levels which is bad for kidney function. My doc has agreed that if I can keep ferritin around 1000 it's OK to suspend Exjade for three weeks, retest and see if creatinine has dropped to a lower value. I've done this from time-to-time and have gotten the results hoped for. There are other side effects, but they are manageable for me.

Good luck and I hope you have good coverage. This Novartis drug is EXPENSIVE !!!:cool:


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