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-   -   blood counts (http://forums.marrowforums.org/showthread.php?t=5511)

Faye R Sun Sep 25, 2016 08:57 PM

blood counts
 
Hi I have just have my fortnightly blood transfusion I was wondering why I was not feeling as I usually do latest blood results have told me why
Haemoglobin 83
Haematocrit 0.26
MCV 92
MCH 30
Platelets 31
WBC 0.50
Neutrophils 0.06
Lymphocytes 0.42
Monocytes 0.02
CBC comment giant platelets present
DX RCMD what stage I'm at now who knows Vidaza for 13months stopped due to drug not working anymore:D

Cheryl C Mon Sep 26, 2016 01:14 AM

Hi Faye - I can understand why you're concerned. How long since you had a BMB? Any blasts?

Faye R Mon Sep 26, 2016 07:30 PM

blood counts
 
Hi Cheryl C - I haven't had a BMBT for over a year, my last BMBT said that I was RAEB - 2 but Ruth My haematologist has always classed me as RCMD any way my blast cells are 8% 20/8/15 they were 16% in 16/9/14 that was before the start of Vidaza, I'm never told if there is blasts in my peripheral blood. I think my blasts have gone back up again to 16% - 20% just got this gut feeling in my stomach, is there any way I can get my neuts: up I take all the Vitamins etc I know I'm lucky still to be here I refuse to give up, to much to look forward to like the rebuild of our poor city.
DX ???????:cool:

DanL Tue Sep 27, 2016 02:07 AM

With a WBC that low, neupogen might be an option, but I know that some doctors were reluctant to use it because of the potential for creating a blast crisis. From what I remember reading, the increase in blasts resolved after discontinuing neupogen. I don't think any of the research was really definitive on this point, and may have been refuted. It may be worth talking to your doctor about it though. The combination of low HGB and low whites could make you pretty tired. I did pretty well energy-wise for 4 years with really low platelets but otherwise decent WBC and HGB. It wasn't until my whites dropped that I really experienced fatigue. I know that doesn't make a lot of sense, but it was the correlation that I drew at the time, and the doctor confirmed that when you reach the near zero neutrophil count is when you feel the most debilitated during transplant.

Also, a quick comment on RCMD versus RAEB-2 - RAEB-2 can have multi-lineage dysplasia, but is defined as having 5-19% blasts. RCMD is usually defined by multi-lineage dysplasia with less than 5% blasts.

Cheryl C Tue Sep 27, 2016 06:57 AM

Re increasing your white cell count, there are some websites that might be of interest. Here are a couple:

http://renegadehealth.com/blog/2013/...ount-naturally

http://naturalon.com/top-10-natural-...stem/view-all/

Naive Wed Sep 28, 2016 09:30 PM

My doc is discussing long term Prednisone alongside the Neupogen because the Neupogen alone, whilst somewhat effective, has not increased my white cells into the safe zone.

I don't know if that's an option in your case.


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