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Hi JEZ,
Like you were, I am recovering my counts using 200mg of Neoral (but twice a day); so far my kidneys are hanging in there, but I am worried that eventually I might have the same problem as you, or when I eventually start to taper, the counts will drop.
I agree with Michelle, though. I remember that after my first round of ATG, when the doctor started tapering the CsA, my counts would drop, but then go up again (I was getting weekly CBCs).
It may be too soon to tell what is going to happen, but there is the hope that this is only a temporary drop, and that the Immuran will start to do its job, but that may take a while, too.
I guess all you can really do is watch and wait; but I understand how you feel... my counts dropped a little last month, and I was scared for the whole month until I got another CBC.
Please keep us posted, and know that we are all wishing the best.
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Male, 56, dx Nov2006 VSAA (BMA:0%). Responded to ATG/CsA/Prednisone/Neupogen Dec 2006, but relapsed in June 2007. Counts are responding to using CsA 200mg bid alone since Jun 2008. Last PRBC tx: Jul 2008.
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