Quote:
Originally Posted by Hopeful
Hi JEZ,
Did your kidneys recover after stopping Neoral? Are your creatine and GFR again at a safe level? If so, I wonder if you can continue Neoral in parallel with a much lower dosage. I've read that some people need as little as 25 mg bid to keep from relapsing. Of course, your kidneys must be recovered to try this experiment!
Also, I'd check to see if your doctor will let you monitor your chemistry panel more frequently while changing medicines or dosages so that you can catch the effects earlier.
I hope it is just a temporary slide while your body adjusts to the new meds. Hang in there!
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Labs today (in parentheses are labs when came off CsA May 21 and had been on 50mg Imuran generic 2 weeks): Platelets 88,000 (148,000), WBC 5.00 (7.80), RBC 3.45 (3.60), Hgb 11.6 (11.4), Netrophils 60 (61), Creatinine 1.0 (1.6), and GFR calc 57 (33). So the good news is my kidneys have completely recovered and my RBCs so far are holding. The platelets and WBCs are trending down but not crashing as I feared they would after my last lab a week ago. My doctor increased the Imuran dose to 75mg today... hopefully that will do it. She does not do "booster" doses of CsA with Imuran... I am on Imuran only now. Thank you for your support.
JEZ
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JEZ, 50s, diagnosed AA Dec 2006, ATG one time, serum sickness resolved / took cyclosporine (Neoral) with delayed response but now with good labs/ recent kidney toxicity, so off of cyclosporine now and trying generic Imuran
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