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Update
Its been a while since I posted, so I wanted to fill all of you in on what's going on. My mom was admitted to the hospital on 6/30. After a battery of tests, they found her to be in excellent health other than the MDS and started her on chemo on 7/2. They gave her chemo on 7/2 and 7/7 and said that it will take 28 days for her counts to recover. She has had countless platelets and transfusions over the past month. The first week was really difficult--they could not control her pain and she could not longer take vicadin and ibuphropen since they are blood thinners. They tried morphine, no luck. They moved her up to delatiod (sp?) and that helped some. They then put her on lidicane and phetranol patches which just moved the pain away from where the patches were placed. Here's the interesting thing... after a few days of chemo, her pain lessened significantly and now it is gone. They say her uncotrollable pain was acutally related to the MDS.
So, now we wait for her counts to come back up. Her WBC is .3 and her platelets are at 21. Based on the schedule, they should start improving tomorrow. Once her counts have stabilized, she'll go home for a week, maybe 2. THEN, she goes in for a bone marrow transplant!
They found a 28 year-old female that's a 10/10 HLA match!! Mom mom is scheduled for day -8 on Aug. 19th and her stem cell infusion on Aug. 27th. It's amazing how quickly they have managed to pull all of this together.
I'll send an update again soon.
I hope all of you are well. My thoughts and prayers are with all of you!
Best,
Amy
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daughter of Judy, 65 years-old, DX 2009 hypocellular MDS, multiple chromosome abnormalities, BMT scheduled for August 2009
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