I had my first post-discharge clinic appointment today (I didn't see Mr Dangerous in the waiting room, either, despite his saying he comes in Mondays and Wednesdays for bloods). The doctors are all really pleased with my progress and bloods, but want to see the results of my BMB tomorrow before they get too optimistic.
I'm getting sedation for the first time tomorrow for the biopsy as they seem to be getting worse and worse for me - the last one, the Doctor got me so upset beforehand by pushing my appointment up several hours and saying she couldn't wait for my fiance to jump in a cab and be there with me to hold my hand that I ended up sobbing through the entire thing. I find them unspeakably horrible, excruciatingly painful, and extremely drawn out, so I'll try anything to try and deaden the horribleness even a tiny bit.
So I'll be back in clinic in two weeks for the results, but until then, the Dr gave me prescription refills for the next two months, and I was shocked at the size of it all! Three enormous bags full! In the UK, if you're not exempt (old age pensioners, on benefits, pregnant, a child, etc) you pay £7.20 per prescription, no matter how long the doseage. So my bill was a WHOPPING £72. Aye yae yae. So I'm really glad the chemist told me about the NHS prepay scheme, where you can pay £104 for an entire year's worth of prescriptions and be done with it. So I did that today, and I'll get reimbursed the £72 when it arrives.
It does steam me up, though, that even though I've got "pre-lukaemia" I've still got to pay for all my prescriptions, when cancer patients get all theirs for free. So if they'd just have waited long enough for mine to turn into AML, I'd not only get free prescriptions, but have access to personal nurses, masseurs, benefit advisors, support groups, and free money to help out with the costs of not being able to work. As it is, I (and others in the same boat) get nothing. I think it's that there aren't enough MDS cases and we don't shout loud enough to be classified under the cancers, but it still winds me up, especially when everyone assumes every baldy out there has got cancer!
Sorry, rant over. I should probably not post when I'm so uptight and anxious over my BMB in the morning...
