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Old Fri Aug 28, 2009, 07:45 AM
squirrellypoo squirrellypoo is offline
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Join Date: Nov 2008
Location: London, UK
Posts: 458
Day 51

GUH. I was home for less than 36 hours! Then I got a fever and headache and nausea but the morphine actually worked on the headache this time, thank god and they brought the fever down. But they had to do a lumbar puncture (spinal tap) today to try to determine the cause of the infection. And the LP was a piece of cake compared to the bone marrow biopsies I've had to endure so that wasn't as bad as I'd remembered from the one I had ten years ago.

Anyway I may find out tomorrow what it is and exactly how long I'll be in, but they're thinking maybe meningitis or listeria now, neither of which is as bad as they sound as all of those bugs respond well to tons of antibiotics. They didn't find any live bugs in my spinal fluid, they're assuming because I had the preventative antibiotics last weekend (grr) which may make identification really difficult. But I'm hoping the antibiotic course won't be too long this time since it's so concentrated - I had three separate IV AB drips before 9:30 this morning!

I feel much, much better right now, though my back is still a bit sore from the puncture yesterday. But it's bad timing as my mom's flying back to America tomorrow after spending the whole summer with us, so now she's pretty distraught. It's not like I planned it this way!
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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