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One of the primary goals of your mother's treatment is to get her blood counts up and lessen the fatigue. Her quality of life depends on being able to do the things she wants to do. Let's hope Neupogen and Aranesp help boost her granulocyte (white) and red cell counts. Has she gotten many transfusions?
It may help you understand and track her progress if you know her blood counts from week to week and her MDS subtype or classification when it's determined. Many patients in the 5q- category are candidates for treatment with Revlimid. You might ask for copies of the results of your mother's bone marrow biopsies and ask her doctor (or Marrowforums members) for help in interpreting them.
If she has a positive attitude, that's great news. How we each react to news of a serious disease depends on our personalities and our outlooks on life, and I think a positive attitude helps tremendously.
I suggest that you write down questions you'd like to ask the doctor, and questions she'd like to ask the doctor, so you don't forget to ask them. Please let us know what happens.
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