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Old Fri Oct 16, 2009, 07:20 AM
squirrellypoo squirrellypoo is offline
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Join Date: Nov 2008
Location: London, UK
Posts: 458
Day 100

Today is my Day 100!!! In some ways the time has really flown, and in others, I swear it felt like way, way longer. My fiance and I wanted to celebrate by eating in a restaurant (first time since transplant!), but since everything would be too busy on a Friday night, we're going round the corner to Brown's along the river for lunch instead. If I remember correctly, they do some mean mocktails, too.

I'm still going in every morning for the Casperfungin drip, and it looks like that's probably going to continue until at least the 28th, when I have my Liver CT scan, though fingers crossed that'll show that the lesions have reduced in size and I can go back to oral antifungals and get my life back a bit... But I've finished the course of Rituximab for the EBV reactivation, and my PICC line insertion went well on Wednesday. They got it in on the second try, and I had a ton of site bleeding on Wednesday night (even though my platelets were about 150), but it's stopped now so they're not too concerned. It's just nice not to have to get cannulas all the time and have my hands free again!

Also, it appears that my crashing counts were mostly due to the huge daily Septrin doses I was taking for my Hickman line infection - once those stopped, my counts have started to climb back up again, even though the Rituximab is still in my system. Hopefully once that's cleared they'll resume their previously high levels I was enjoying before all this inpatient mess in August and September!!
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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