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Living with MDS in your 40's
My AA has morphed in MDS and PNH, but is currently in remission, anyone else out there that is dealing with this and dealing with younger children? Next step is a BMT when the counts go down. How do you prepare your children and not scare them at the same time? They are 10 & 11 and I have not been sick in their eyes for the past 3 yrs. The MDS & PNH dx are new and we are in the "sit and wait" position until something happens. I will have an unrelated donor and know that my chances are at best 50/50 even with the 10/10 donor.
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