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Old Sat Oct 31, 2009, 04:24 PM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Hi, I have the same problem. None of the doctors who have done a BMB have mentioned blast counts. The only reason I know they were 4% was because I requested the written bone marrow report. Even then, the doctor ignored me. I ended up throwing a bit of a tantrum about my right to know and then I was given a copy of the result. Out of all the BMBs I've had, that was the only result I've ever been given. That was back in 2004. No results given to me since then. I've only been told the bits that the doctor thought pertinent.

I've decided not to create any animosity with by current haematologist by asking for the report and to trust that he will tell me anything that is abnormal.

I hope my trust is not abused.

Chirley
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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