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Old Fri Nov 13, 2009, 10:22 AM
squirrellypoo squirrellypoo is offline
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Join Date: Nov 2008
Location: London, UK
Posts: 458
Day 128

A couple bits of good news to share...

Monday's counts were, for the first time ever, all four in the normal range! I've seen each of them in the normal range individually, but never all at the same time. My whites fell a little bit on Thursday's count, but I'm no longer completely obsessed by every little rise and fall. Here's Thursday's (yesterday's) counts anyway:
WBC: 3.80
Hb: 12.2 (another new record high!)
Plt: 415
Neut: 2.55

I finally had the stomach endoscopy on Wednesday that was ordered back when I was an inpatient in September. It was a truly, truly horrible 5 full minutes of continuous dry heaves, retching noises, and eyes streaming with involuntary tears, but the endoscopist said everything looks perfectly healthy and he took some biopsy material just to be sure whatever's in my liver hadn't caused the thickening of the stomach wall that showed up on the CT scan back in September. I would really love to live the rest of my life without ever having to endure another one, but if I have to find a bright side, it's at least that they went down the throat and not up the bum!!

And the last bit of good news is that my wonderful post-BMT nurse specialist has arranged for home care to start next week! So I'll only have to go into HOP twice a week for blood tests (and the caspofungin IV, since I'm there), and the district nurses will come to me on the other 3 weekdays to give me the IV drip. Apparently they're excited because I live on a boat and it's something fun and different (though maybe they'll reconsider after dragging a pump down the moorings gangways!) and also because they don't often treat younger people so it'll be something different for them in that respect, too.

Oh, and it was fun to run into Carolyn from this forum (and her adorable daughter) at HOP last week, too!

PS: and the steroid cream has really helped the GvH hives. They've now gone dry & flakey, which is much easier to handle, and there's not evidence of GvH in my stomach, either.
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)

Last edited by squirrellypoo : Fri Nov 13, 2009 at 10:24 AM. Reason: forgot to update on GvH stuff
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