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Old Mon Dec 14, 2009, 09:08 AM
squirrellypoo squirrellypoo is offline
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Join Date: Nov 2008
Location: London, UK
Posts: 458
Day 159

The only news I got on my lung biopsy today isn't really news at all - nothing has grown yet. So it's not bacterial or TB, and it's probably fungal like they expected, but they still have to wait for something to grow to identify it. I'm hoping I'll know something when I'm back in on Thursday.

On the downside, my WBC and Neutrophils have fallen slightly (2.80 and 1.96, respectively), but that might be related(?) to my EBV levels being really high again. My initial reactivation had levels of 30,000 and they told me that if it goes above 100 or so they give you Rituximab, and that worked really well but now they've climbed back up to 42,000 so apparently they're going to discuss me at the histology meeting this week to se if it's worth giving me another course of Rituximab. Which isn't bad (for me at least) but it's just a PITA since it takes up an entire afternoon for four weeks straight, and between this, the continuing daily Caspofungin IVs and whatever they're going to give me for the lung critter, going back to work and being able to start running again in January are both looking grim.

Still, one result today that made me smile - sometime last week my blood type finally switched!! So you're now talking to a card carrying member of the O positive family. It only took 5 1/2 months!
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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