Hi, I wrote some time ago that I had severe intractable itching. I asked my haematologist about it and he acted as if he had never heard of it before in relation to bone marrow diseases.
I don't have a platelet problem just decreased reds and whites.
I am totally confused because Birgitta responded that it is common among people with haematology problems and also, if you Google it, it seems to be a common haematology symptom.
So why would my doctor not know about it? He is a very experienced and educated doctor.
I sympathise with anyone who suffers from this, it's horrible.
Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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