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The kids don't realise that the local hospital is affilaed with the Vince Lombardi cancer center and is part of the Aurora St. Lukes medical center of Milwaukee. We were told of his tongue cancer on feb 14, 2007. He started his treatments on March 26, 2007. He received 3 cycspla.tin treatments over 6 weeks with 40 treatments of radiation. After each chemo treatment he would spend 2 weeks in the hospital. He would get out in time for the next treatment. We were told that without the treatments he had only a year,but with the treatments he could live a long time. We felt like we didn't have a choice if we wanted him to be with us for longer then a year. (It's been 3). We were never told that MDS was possable sideaffect. I don't leave the hospital. I want to be here to be able to ask each dr. questions. He has a team of dr's. we have his MD. and the oncology-hematology, kidney, heart, g i, and the urology Dr's are here everyday starting at 6am and the last dr is here by 8pm. We are looking for any kind of help and info that we can get. The Dr's want us to sign up for hospice bridge program. I am afraid to.
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