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Old Tue Jan 26, 2010, 12:02 PM
squirrellypoo squirrellypoo is offline
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Join Date: Nov 2008
Location: London, UK
Posts: 458
Hmm. I don't want to sound like I'm bragging, but I haven't had any muscle weakness at all (only a day or so after coming out of the two long hosital stays and then back to normal). In fact, in the last week or so I've gone back to me pre-illness habit of running up flights up stairs rather than walking up.

I've been trying to determine what's different in my case, and the things I can think of are perhaps:
1. I was EXTREMELY physically fit pre-illness and didn't lose any weight in the transplant process so I'd think there'd be no muscle wastage (compared to someone who lost all their body fat and the body starts breaking down muscle)?
2. At home, in order to go from bedroom to toilet or bedroom to kitchen, I have to go up/down about ten steps (two sets of 5-6). Then it's about set of 5 to go out of the boat and about 100m to get to the road to be driven to hospital. So even at my worst, I was still walking and climbing a lot just to do the basics.
3. I was never on steroids and came off cyclosporin at 2 months post-transplant (don't know if it's relevant?)

But yeah, after an afternoon in the office last week, today's my first full day, and I walk to/from work which is about 30-35min walk (it's about 3km/2mi) each direction so I'm getting exercise there, too. I want to give myself a week or so to get used to that milage and the long workdays and then I'm going to start running again (I don't want to start working AND running at the same time and overdo it). Then you'll REALLY see a smile on my face!

(though Laura, even I wouldn't be able to do 12hr pediatric nurse shifts! omg that's so much more high energy than my desk job!!)
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)

Last edited by squirrellypoo : Tue Jan 26, 2010 at 12:09 PM. Reason: checked how far my office commute is!
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