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Old Mon Feb 1, 2010, 10:00 AM
squirrellypoo squirrellypoo is offline
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Join Date: Nov 2008
Location: London, UK
Posts: 458
Day 208

Another good appointment today. My liver function tests are getting slowly better so they're going to give me a further two weeks on the oral Poseconozole and reassess again. They're happy that my counts are stable within the normal range, so I only have to go in once a week for blood tests now, and he said they could probably reduce that further pretty soon. Hooray! I asked about shellfish and how long I'd have to avoid it, and he conceded that if it was really well cooked (ie: I'd do it myself from home) then it'd be ok, but to still stay away from soft cheese. We've got such a stockpile of lovely prawn, crab, and lobster stuff in the freezer for "when I can eat it again", it's going to be wonderful!

I asked about flying for my wedding reception & honeymoon in September and he said that shouldn't be a problem. He's happy for me to start running again and said I should get a dental checkup and enquire there about the stains left on my teeth from all the mouthwashes during the transplant (coffee coloured stains in between my front 5-6 teeth top and bottom. I'm hoping they'll come off with a professional cleaning but I doubt it). Oh and my lung function tests results were all good, even a couple of 100%s on my report card (as it were).

And then I had to wait around to see the dermatology consultant, who seemed genuinely disappointed that the spots all over my face are just bog standard acne and nothing more exciting, like, ooh flesh eating virus or leprosy or something. So I've got an additional antibiotic and gel for that. It just came out of the blue two weeks ago and is far worse than anything I had as a teenager. Trust them to make me feel young again, in the most unwelcome of ways!

So all in all, very good, and I'm happy to sleep in on Thursday instead of going for my counts.
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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