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Old Mon Feb 8, 2010, 01:29 PM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
MDS and dementia

Hi virgswims,
As far as I know dementia is not connected with MDS. Do you know your mother's platelet count? Vidaza very often decreases the platelets initially. If her platelets are low she can have had a small bleeding in the brain? If a bleeding has caused the symptoms from the brain she can recover when the bleeding is absorbed.

I am very afraid of that kind of stroke myself because my platelets are very low (last count 32) and don't function well. My blood pressure is low but when we for example are coughing the blood pressure will rise. I am hoping for the new drug Promacta for my low platelets.
Kind regards
Birgitta-A
70 yo, dx MDS Interm-1 May 2006, transfusion dependent, Desferal and Exjade for iron overload, 2 Neupogen injections/week for low white blood cells
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