[Deanna16]

David I feel the same as you do and have felt that way since my dx in Oct 09. You have gotten so may wonderful replies from the board. The disheartening thing for me to see all of them though is my doctor insist there is nothing for me to do and won't even really discuss the idea of progression. She has been making her decisions with the guidance of Dr. Young and has a strict criteria for treatment, which is fine. But reading all these replies makes me again feel liek I'm not doing enough...and I am pretty annoying and persistent when I go to her office LOL. I ask lots of questions and question the reasoning behind the answers so I can understand. Maybe it's cause i'm such a type A personality! In the meantime though, planning financially gave me a small sense of control and helped me feel a bit better...again, until i read this post LOL