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I too think they rely more on the peripheral blood counts to monitor John's status. The only reason they check for PNH at Hopkins is because of the clinical trial he was in. They want to track those stats. They usually do a follow-up BMB but I think they felt John had been through enough and have not asked for one.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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