|
I have suspected that many of the timelines and prognoses I have come across when researching MDS are rooted in the past and have changed significantly in recent years. I am waiting on results from an EPO blood test plus a 2nd BM scan (this time with cytogenetics). Hopefully there are no incr in blasts. Meanwhile I'm looking at TF#6 probably next week
I am encouraged by Vera W's story. And I did take your advice wrt the vidaza w/s. Most of what I'm reading seems to point me toward vidaza treatment followed by a transplant. I should find a match with one of my 4 brothers. But it does seem like everyone has their own unique response to treatments and seemingly much of it is hit or miss.
I'm trying to maintain some level of fitness x/c skiing 1-2 hr/day, a far cry from the 4-5 hr/day of last season. The irony of this situation is that I only found out about my low Hg when I had a blood test prior to hernia surgery. I never did get it fixed and it is a constant source of aggravation, especially when I exercise... and I can't stretch at all. And they won't repair it til my blood #s are up.
|