(almost) 8 months
Another good clinic appointment today - all bloods were in the normal range and I had a record high for haemoglobin again (14.2!). They're still cautious about my super high liver function tests but think my immune system might be strong enough now to deal with whatever's there without the antifungals getting in the way, so they're booking me in for another liver CT scan in a few weeks.
But the liver stuff is just numbers on paper, I feel just fine. Still working 4 days a week, still very happy to be running, and my skin GvH is getting better, though this horrible acne is staying firmly put. I have a gynae appointment in April so I'm really hoping they can clear it up then, as the dermatologists are almost certain it's related to my polycystic ovaries (only diagnosed when I went through IVF to freeze embryos pre-transplant).
But some really awful news this weekend from my Welsh friend David who also had his transplant last summer and whom I always count in our circle as "one of us summer transplantees". His lymphoma is back, and it's terminal. They're both younger than me (in their 20s), and been married only since Oct after years of long distance relationship and visa battles and now they won't even have a full year together. The news and her outlook on it all has just broken my heart. It just doesn't seem fair that I got all the Good and he got all the Bad. Please, please keep him and his family in your thoughts for the little time he's got left.
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding!  I've run 5 marathons now!! (PB 3:30!)
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