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Originally Posted by helen c.
my husband william has been dx with mds raeb 2 his last bmb 2 weeks ago showed 17% blasts up from 10% last sept. so vidaza has stopped working. it was suggested at moffett cancer center yesterday to either try dacogen on the same schedule as vidaza or we could try a clinical trial for erlotinib we went with the clinical trial first to be bmb in 2 months they said if he showed improvement it would be quickly as he would need less transfusions as he is getting them weekely now if he does not imrove they will try the dacogen pray for us
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Hi Helen, Just wanted to say that you and I are going through similar circumstances. My husband had been on Vidaza for 15 months and it worked great until now. His platelets are to low to continue. We haven't had treatment for a month and we are still waiting to see if his platelets will come back up. So far, no. The doctor discussed dacogen but we are in limbo until his platelets are better. Our husbands share the same diagnosis Raeb-2. You are in my prayers. Feel free to write me at any time this is such a scary time. Wishing you well. Rose