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Old Sun Mar 28, 2010, 10:35 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 769
Is your daughter tapering down on the Prednisone? Prednisone is usually given for 2 weeks post-ATG (to fight serum sickness) and then tapered within a month or so. You definitely don't want her to be on this drug longer than necessary.

It is my understanding that a transplant is regarded as the first course of treatment for SAA for people that are under 20 with a matched sibling donor, as the probability of survival is around 85%. Younger people also have less risk of GVHD.
http://www.marrow.org/PATIENT/Undrst...mes/index.html

If possible, I would consult with multiple centers as to their best pretransplant regimen, if you decide to go that route.

Where is your daughter being treated? I also am in Northern California.
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58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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