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Old Mon Mar 29, 2010, 07:18 AM
squirrellypoo squirrellypoo is offline
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Join Date: Nov 2008
Location: London, UK
Posts: 458
Day 264

My 31st birthday was last week (hmm, guess I'd better change my sig now) and it's all been really good and positive to throw away the old crummy year and start with a new fresh year just as the buds and flowers are emerging and the sun is peeking out.

I had a clinic appt today following last week's CT scan and the result there is that the lesion in my liver is still there, but my liver function tests are all still trending downwards. So even though they're all above normal, they're going in the right direction so they're taking me off the Posaconazole (anti fungal) entirely since my counts are so good and they suspect the lesions might be a drug reaction anyway.

My counts were:
WBC: 6.something
Hb: 13.8
Pl: 288
Neutrophils: 5.something

(no printout today so these are from memory)

...which make me really happy! And they're happy enough to let me only going in for blood tests once a fortnight now instead of weekly, and in a month or two when they can see my liver function without the antifungal, he said I might gown down to monthly (and have a drink again), which would be nice.

Another thing is that I'm involved in a study looking at whether the rehabilitation of transplant patients can be helped by life coaching, so I'm pretty excited to start my first session with the coach on Wednesday. I'm a pretty organised person anyway but I've got a lot going on this year and I think I can really benefit from someone else helping me to realise what I really want and setting goals to get there.
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding! I've run 5 marathons now!! (PB 3:30!)
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