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Old Thu Apr 15, 2010, 07:07 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Rcmd-rs

Hi Chirley,
As far as I understand you have RCMD-RS. Do remember that the statistics about survival are from 1997 and we live much longer today.
http://www.cancer.gov/cancertopics/p...al/page3/print

I think that as long as your platelet count is OK they won't classify the thrombocyte cell line as affected.

Valproic acid as monotherapy has not showed so good results as Vidaza (about 50% of the patients improved). This study - with 24% of the patients improved - is quite old but now they often combine valproic acid with Vidaza, Dacogen or other drugs. You know we have one member who got a very good result with valproic acid (Epival). http://www.ncbi.nlm.nih.gov/pubmed/16270213

I thought that Australia had the same system as Sweden with high taxes and hardly any costs at all for treatment and I am surprised that you have to pay so much for Vidaza .
Kind regards
Birgitta-A
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