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Old Fri Apr 23, 2010, 01:46 PM
Neil Cuadra Neil Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 2,557
A number of forum members have posted about taking Dacogen. There's a thread named Starting Dacogen and a more recent one named Dacogen for MDS. You'll find others if you use the forum search page and search for dacogen or decitabine.

Did they rule out a transplant due to your father's age?

To get the bigger picture I suggest that you contact the Aplastic Anemia & MDS International Foundation and get their free booklets named "Your Guide to Understanding MDS" and "A Guide to Understanding FDA Approved Drug Therapies for MDS". See their order form.

I also recommend reviewing the patient information from the MDS Foundation, especially Understanding Myelodysplastic Syndromes: A Patient Handbook (PDF, 220K).
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