[evansmom]

Hi Laura,

Geez, how frustrating. I can appreciate your position in terms of being critical with your treatment centre/employer however, you are stating the facts, you are not naming names and you are entitled to seek emotional support from your friends here and vent your frustrations.

I cannot lie, I am a bit concerned about your pulmonary issues and the fact that you responded so quickly and favourably to the high dose pred.

Your immune system is still very young and you are still somewhat suppressed on the gut GVH med ?budoneside. The two things I would be on alert for are:

1. Fungus in the lung
2. Bronchiolitis Obliterans (relatively rare post BMT complication of a gvh nature, Mark Yates had this) which can become even more symptomatic +/- serious if a pneumonia develops over this, which is then called bronchiolitis obliterans organizing pneumonia (BOOP).

Each condition has a very specific treatment.

I sure as hell don't mean to alarm you but knowledge is power. No one on your medical team is losing any sleep over your situation, you know what I mean?

At the end of the day, you are not seeking a gratifying friendship with these folks. It doesn't matter if they think you're annoying or a pain in their ass. They would be no less concerned than you are if this was them or their loved one. If something doesn't make sense or your gut tells you they are on the wrong track, say so. Push hard for what you need, you ARE worth it!

I don't buy this sudden asthma diagnosis either.

Take care and please keep us posted.