Hi Laura.
Oh that sounds like such a good result with the pulmonologist! Funny that he says Azithromycin is to keep your lungs happy - I wonder if that's why my team have said I'll be on it for life? I'm relieved to hear that they're not suggesting you get a lung biopsy - I don't want to scare you, but mine was HARDCORE. General anaesthetic, two solid weeks of being totally reliant on super strong painkillers, and it resulted in 3 rather large scars and the permanent loss of sensation in my right breast (apparently they hit a nerve while in there, thanks guys!). And they went in to diagnose what they thought was a fungal infection only to get no result whatsoever. So don't be bullied into having one just on the off-chance it might reveal something - if they do it, make sure it's for a really really good reason.
I'm off to reply to your PM now...
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding!  I've run 5 marathons now!! (PB 3:30!)
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