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Old Mon May 3, 2010, 01:45 PM
Mimi C Mimi C is offline
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Join Date: Jun 2009
Location: Fouke, AR
Posts: 14
MDS to AML Frustrated & don't know what to do next

My Mom was originally dx 77 years of age in Jan 09 with MDS. Treated with Vidaza for 6 cycles with no improvement. Went to a clinical trial in October - February. No lasting improvement. Bone marrow in Mar 10 showed 30% blasts. Monday 4/26/10 blood results showed increasing WBC to 13 with 70% leukemic cells. In hospital since 5/1/10 with pneumonia. WBC now at 37.5. Other levels falling quickly. I am having the worst time getting through to the doctors here to get transfusions started. They work with hospitalists which is a doctor supplying company contracted to the hospital. We need transfusions no doubt but does anyone have any other suggestions? What happens when the WBC continues to climb?
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Mimi, daughter of Lucy age 77, diagnosed MDS Jan. 09; Vidaza Jan 09-Jun 09 no improvement; Clofarabine clinical trial Oct 09-Feb 10 mild improvement in blasts; blasts 4% in Aug 09; 30% Sep 09; 2% in December; 30% in March; AML diagnosed April 2010 .
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