Below is a copy and paste from my caringbridge as it pretty much sums it all up
Day +342
I can't believe that this time a year ago I was preparing for transplant and now here I am almost a year later. I just am in awe and disbelief that it was a year ago. I will be having a party at my house June 12th to celebrate my one year post transplant anniversary.
I met with the pulmonologist today. Prior to the appointment I had pulmonary function tests. My lung function has improved since starting the treatment for the possible B.O., which he also calls GHVD in the lungs. So I will continue with the treatment for a few years minimum. The doctor says that the hope is after a few years my body can co-exist with my cells and therefore we won't have to worry about my lungs at that time. I will have followup pulmonary function tests a minimum of every four months. If I get bronchitis or any other illness related to the lung I need to let him know right away as this could trigger a response that could cause an increase in GHVD in the lungs (because once the bronchioles get irritated it causes room for the GVHD to occur) and a significant drop in lung function, which is the main concern.
Work is going great! We are so insanely busy. It is very crazy at work but I am loving every minute of it! It is so great to be back at work doing something that I love to do (pediatric nurse).
In three weeks I will have my one year testing. Then Ryan and I will be heading to Canada for a vacation. It's time to get back to normal life...thanks to a generous donor whom I will forever be grateful and the almighty Lord.