Hi everyone... this seems like the place to be!
I was diagnosed with AA in 1996 aged 20, and now at 34 - MDS, and I am preparing for transplant sometime soon. Should know more after this next Wednesday, my first appointment at the transplant unit.
A bit scarey, but bring it on I say! There's quite a few in the same boat. I don't feel so much like an alien now.
I am in Australia - not many of us here (my age anyway).
Take care all,
Jules
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Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
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