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Laura
Quote:
Originally Posted by Laura
Linda I am just wondering why you are not a candidate for transplant because of the TERC?
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Hi Laura, the reason I'm unfortunately not a candidate for transplant is, because I am at risk for liver cirrhosis and pulmonary fibrosis (which I'm showing early signs of) due to TERC. Thanks for asking....
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Linda, 47 yo, married, mother of a teen, moderate AA w/ TERC mutation (2007 NIH), Pulmonary Fibrosis 2010, was on Danazol study (Aug 2011-2013 & restarted 9/14/15), last transfusion May 2011. On Promacta now. Needing a double lung and stem cell transplant.
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