|
Hi Jill,
Sorry about your Dad's experience. Just getting the diagnosis is enough to knock one off their feet without these other complications. My husband was diagnosed on May 24, 2010, and I'm still researching as much as I can. He will begin his second round of Vidaza tomorrow. So far his white blood cell count has been fine. It's his red cells and platelets that are affected. But they told us in the beginning if his white blood cell count gets low, then he needs to REALLY do everything possible to keep from getting an infection. For example, staying away from sick grandchildren or children (or, I guess, anyone that is sick or has been sick, for that matter), NO eating at buffets, hand washing or sanitizing constantly, and the list goes on and on. They even said not to eat lettuce because you can't wash off the pesticides, I guess, good enough and to only eat fruit that can be peeled.
Probably someone who has low WBC's would be a better person than me to discuss this with you but just thought I'd share what I've learned so far.
Also, as was stated by the above post, maybe you could discuss with his doctor trying Vidaza instead of Dacogen. My husband has had two stents put in his heart as well as other heart-related issues and, so far/so good, the Vidaza has not caused any additional problems.
God bless you and your family as you fight this disease along with the rest of us.
Linda
|