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Marie
Hi - Thank you for your response. I am encouraged to hear that people have been on Dacogen for extended periods of time. I am trying to deal with the tiredness and am hoping it will get better or I'll get more accoustomed to it. We are holding off on transfusions for now. I start my 3rd round on the 19th and will see how that goes. I wish you the best.
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Susan Patient, 58, MDS, UPDATED 9/13
Now have RAEB-2, Firbrosis 3+, blasts 18% peripheral, 10 - 14% blasts marrow, chromosomes now T 1:21, trisonomy 16 and 1.- Match found ---10/10 -couldn't believe when I heard - Tentative day is 1/09th!!!! Admit date changed to 11/12. WOW -
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