Welcome to Marrowforums, Cindy.
I agree with Lynn about the importance of learning about these diseases and asking questions. Being your advocate is vital to getting the best care. That means that you consider yourself a full partner in your medical team, partnered with the medical professionals.
I suggest that you contact the
Aplastic Anemia & MDS International Foundation (AA&MDSIF) if you haven't already gotten their information packets. You can also find information about the diseases in our
Bone Marrow Failure Diseases section.
You'll find a list of specific coping suggestions in our
Coping with Aplastic Anemia and similar
Coping with MDS sections. Everyone has his or her own way of coping but those tips can help. Sometimes it takes a serious illness to help us find our inner strength, but nobody can handle everything by themselves. The core of your support team is your family and close friends, but it helps to have people who have had first-hand experience with AA or MDS on your team too. You've found some by coming to this site.
Is your next appointment scheduled? You'll want to have a definitive diagnosis as soon as you can so you'll have more of an idea what's wrong, what to expect, and what treatment choices you have.