Hi Barbara-
I'd love to hear from others who did this trial. When did you do it? I guess fairly recently, if you're still sending back the vials. I was also very impressed with the level of care while at NIH. It made me nervous, though, when I left.... it was like going from a cocoon environment to "normal" life and I was totally freaked out about getting an infection. I never did........
Have you talked to others on the trial ever?
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Dx. 6/08 with AA, then changed shortly thereafter to MDS. Campath trial at NIH March '09 and have been transfussion independent since June '09
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