Deb-
I'm surprised anyone would pay for it, since it is not standard treatment... but I don't know how things work in Canada. If you do the trial at NIH, you don't incur the expenses at all because you participate in a trial and no benefit is guaranteed to you. they also take more blood and bone marrow for research uses. But, perhaps you shoud look into it. It is 12 total days that you spend at the NIH....
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Dx. 6/08 with AA, then changed shortly thereafter to MDS. Campath trial at NIH March '09 and have been transfussion independent since June '09
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