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Mds/aml
Hello Jenni-fleur,
I agree with Melissa and Lisa. Please, if you have not already done so, try to get to a center like Kings College in London that has expertise. Don't give up!! If you need names of other centers in USA, let us know. What is your blast count in BM? Have you been tried on Vidaza as a bridge until you can find a donor match? I know Vidaza was not approved by NHS but should be available in combination with other drugs in a clinical trial. If you are too sick to search for clinical trials, try to get someone close to advocate for you. Good luck!
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possible low to int-1 MDS with predominant thrombocytopenia, mild anemia, dx 7/08, in watch and wait mode
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