[lkbell]

Back again... at this time they have done another bone marrow biopsy. The result is the same as a year ago.
You asked me what chemo she was on. It was Vidaza. We have been told that she is in the last stages of MDS.. It has not gone to AML.
Our mother was release from hospital last week. They were able to stop the bleeding. She has had match HLA platelets however this has not worked. Her platelet count would go up to 24,000 but within 6 hrs back down to 2-3000.
At this time they told us there was nothing more they could do since she has become refractory to transfusions.
She is taking Amicar to clot her blood. We have proceeded with hospice as recommended by the dr.s. She has not had a transfusion for over 11 days.
She is doing better I think because she isn't getting all those transfusions. She probably has had over 80 in the past year.
We are praying for a miracle. She is up and about eating great and seems to be getting stronger everyday. She is tired though and rest's quite a bit during the day.
Just wanted to give you an update.